• Cortene Study,  Encouraging Words,  Helpful ME/CFS tips

    Things that help: Mestinon

    Hi guys. As a start I just wanted to give you a quick update on what I know about the Cortene Trial. In a word, nothing. ha! It seems they are not in the habit of telling patients what the results are until the rest of the world also knows. I do know at least one patient it has helped, I don’t know about the others. I have no idea when the study will be published. I wish I knew, sorry about that! I get emails every week asking. I really have no idea. In the meantime… Mestinon Mestinon! If you have not tried Mestinon I highly recommend it! I…

  • Cortene Study,  Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    Hello again!

    Hi guys. I wanted to take a minute and jump on here to tell everyone that I’m okay. I have had quite a few emails in the last few weeks wondering how I am doing. Thank you for caring and writing to me. I love hearing from you. I actually started working again and It’s taking up the majority of my energy. I have been dying to go back to work because not having money or purpose in life stinks hah. I was able to find a job as a real estate agent where I have VERY flexible hours. So most days I get up, go for a walk, do…

  • Cortene Study,  Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    How to Treat a Chronically ill Person: What to do and not do

    Don’t leave me My physical body might be suffering but I still have the same soul. I am still the friend, lover, colleague, or family member I was before. I need you in my life, even if I can’t show it. I don’t expect you to treat me differently, in fact I don’t want you to. I just want to be myself. I might have to make some modifications to what we are able to do together, but please, don’t leave me alone. If you were in my life before I still want you in my life now, and I need you more than ever. Do: Stay connected Text me,…

  • Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    What exactly is ME?

    Myalgic Encephalomyelitis Myalgic Encephalomyelitis also known simply as ME, is more than just being tired all the time. It’s a complex illness with multi body system involvement. It is the total dysfunction of the cells, immune system, and nervous system. ME is a total haywire malfunction of the body and overreaction to mild stressors. It is impairment of normal function The best way I have ever heard it described is by ME/CFS advocate Dr. David Bell as a “slow, chronic sepsis.” Severe ME patients have also been compared to AIDS patients in the weeks before their death. Let that sink in for a while. Symptoms When diagnosing ME, all other…

  • Cortene Study,  Helpful ME/CFS tips,  ME/CFS Inspiration

    How to Qualify for Future Studies

    Hellllloooo there! How are you today? I hope you are doing alright! Anyone out there try D ribose or the amino acids? I am trying another amino acid blend with caffeine today seeing how I feel about it. I think it’s helped quite a lot. I am just trying not to overdo it as is easy to do when you have fake energy! I’ll keep you updated on that. I wanted to take a quick break from my “Things that help me” series and address a question I get frequently. How to apply to apply for future Cortene studies. How to Qualify for Future Studies Before we dive in, I…