Hey friends. A couple of months ago I was having a REALLY hard time dealing with ME/CFS. I was in the middle of a crash and I went to my the Myaligic Encephalomyelits page for some support. Here is my post. “I’m having a really hard time dealing today. Been dealing with CFS since I was 19. Now 32. It’s gotten significantly worse in the last two years. I have gained weight and the person I was seems so far away now. I don’t know why my husband stays with me. How do you deal? I kinda want to die. … This pic is me sick but still able to do what I loved about four years ago. About to hike to Utah’s famous delicate arch”
I received many supportive comments on this post which I am so thankful for. Many about how I probably have a genetic disease that causes me to have hyperextended arms and legs.. haha But of them in particular stood out to me. Her name was Sarah (I would be happy to share her whole name, have to get permission first though! :))
“Do you still want to pose in an adorable pink tutu and go hiking, if you could? Then you are still the same person. Your capabilities and appearance have nothing to do with who you really are, and of course everyone who loves you knows that. If the roof had caved in on you right after you took this picture, and you survived, would you say that’s a reason to stop living or to stop being lovable? That’s ridiculous, right? Well, our illness is basically just an accident in much the same way. Even the worst symptoms are just stuff we have to live through. Our circumstances are not us. ”
Some days I simply do not feel like me. But I am still me. If I could go outside and go on a hike I would immediately.
This is me (on the right).
And this (hiking into a volcano in Indonesia).
OUR CIRCUMSTANCES ARE NOT US
Take courage my friends. Our illness is not who we are. Let’s try to remember who we really are before we got sick.
Tell me in the comments: What did you do before you got sick?