I hope you are well. Some good news for us! The Bateman Horne Center is moving forward with CT38 infusions, and my first infusion is TOMORROW! EEK! I am equal parts excited and terrified. It is going to be a three hour subcutaneous infusion. My second infusion will be on Wednesday of this week. As you remember they changed the study so all patients will be getting the low dose. I am expecting to have some mild side effects, but nothing serious. Fingers crossed!
The good news: The study is moving forward and we are closer to knowing whether or not CT38 is a cure for ME.
The bad news: I am not going to be able to talk about my results. I know. Booo right? I have been told that talking about my results can effect the ability of future patients to get infusions. I would NEVER want to cause anyone to not get the medicine, even if it doesn’t work for me. So unfortunately I have to be just a little more vague about my results than I wanted to be. Please forgive me!
I hope that you will be kind enough to send prayers, good vibes, or whatever you believe my way for this week. This medicine working can mean so much for our community.
As always, I send all my hugs and love your way!