Resources

GENERAL INFORMATION ABOUT ME/CFS

CDC ME/CFS  Click Here

Mayo Clinic.org  CFS Click Here

ME/CFS Encyclopedia. Click around this site for more information Click Here  

Health Rising- all things ME/CFS Click Here

CFSIDS Self Help Click Here

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness Institute of Medicine Report 2015 Click Here

Workwell Foundation, disability and testing Click Here

DIAGNOSTIC CRITERIA

Click Here

CORTENE STUDY
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An overview of the Bateman Horne Center CT38 study from the US National Library of Medicine outlining what it is and how exactly it will work click HERE

The Bateman Horne Center Website Click HERE

I highly recommend following the Bateman Horne Center on Facebook. They are constantly doing informational sessions on topics related to ME/CFS. You can follow them HERE.

HEALTH RISING

The Cortene Chronic Fatigue Syndrom (ME/CFS) Drug Trial Begins- an article explaining what Cortene is and how it is supposed to work by Cort Johnson. Click HERE

A VERY SIMPLIFIED EXPLANATION FOR THE FOGGY BRAIN

If you are in the midst of a crash or have major brain fog like me you probably looked at those pages and blanked. Thankfully at my last visit to the Bateman Horne Center it was kindly explained to me very simply. It is believed that the neurons in the brains of people with ME/CFS are stuck in a stressed position. When your body is in a constant state of stress your systems will overreact to any kind of stressor. The drug is supposed to help put the neurons back into their correct form thus relieving the excess stress on the body. This in turn is supposed to remove excess stress on other body systems and relieve the devastating symptoms of the disease. This drug (as I am sure you have read) is supposed to be curative. The Bateman Horne Center is hopeful it will work and immediately be available on the market.

ME/CFS ADVOCACY

Millions Missing  Click Here

ME Association of UK  Click Here

TED

What Happens When You Have a Disease Doctors Can’t Diagnose by Jennifer Brea Click Here

DOCUMENTARY

Unrest  –  Movie by Jennifer Brea, a patient with ME.  Available on Netflix, Apple TV, and PBS Click Here

BOOKS