• Cortene Study,  Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    Hello again!

    Hi guys. I wanted to take a minute and jump on here to tell everyone that I’m okay. I have had quite a few emails in the last few weeks wondering how I am doing. Thank you for caring and writing to me. I love hearing from you. I actually started working again and It’s taking up the majority of my energy. I have been dying to go back to work because not having money or purpose in life stinks hah. I was able to find a job as a real estate agent where I have VERY flexible hours. So most days I get up, go for a walk, do…

  • Cortene Study,  Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    How to Treat a Chronically ill Person: What to do and not do

    Don’t leave me My physical body might be suffering but I still have the same soul. I am still the friend, lover, colleague, or family member I was before. I need you in my life, even if I can’t show it. I don’t expect you to treat me differently, in fact I don’t want you to. I just want to be myself. I might have to make some modifications to what we are able to do together, but please, don’t leave me alone. If you were in my life before I still want you in my life now, and I need you more than ever. Do: Stay connected Text me,…

  • Cortene Study,  Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    Things that help: Antivirals

    When I first discovered that I have ME/CFS I started searching what might help me feel better. I believed I had some kind of virus in my system my body just couldn’t kick. And I knew I had chronic Epstein Barr. I had several tests over the years and some came out positive that I had the active form of the virus, and some came out negative and just showed I had the virus in the past. I had fever like bouts where I would be down for no reason with the aches and pains of a fever, and overwhelming fatigue and sleepiness. (Mono). Yet no temperature and no clear…

  • Cortene Study,  Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    Things that help: Low-Dose Naltrexone,what it is and how to get it

    I first learned about Low-dose Naltrexone (LDN) when I was working on solving my thyroid issues. For a long time I believed my thyroid was the cause of all of all of my woes. Turns out it wasn’t, but I am still glad I found LDN. Even just a little bit of this drug can have a great effect on people suffering from ME/CFS. Naltrexone is an FDA approved medication used to block the receptors in the brain from opioids and heroine. By blocking the receptors Naltrexone helps reduce cravings helping addicts recover from addiction faster. It has also been shown to reduce the rush from addictive drugs allowing addicts…

  • Encouraging Words,  Helpful ME/CFS tips,  ME/CFS Inspiration

    What exactly is ME?

    Myalgic Encephalomyelitis Myalgic Encephalomyelitis also known simply as ME, is more than just being tired all the time. It’s a complex illness with multi body system involvement. It is the total dysfunction of the cells, immune system, and nervous system. ME is a total haywire malfunction of the body and overreaction to mild stressors. It is impairment of normal function The best way I have ever heard it described is by ME/CFS advocate Dr. David Bell as a “slow, chronic sepsis.” Severe ME patients have also been compared to AIDS patients in the weeks before their death. Let that sink in for a while. Symptoms When diagnosing ME, all other…

  • Cortene Study,  Helpful ME/CFS tips,  ME/CFS Inspiration

    How to Qualify for Future Studies

    Hellllloooo there! How are you today? I hope you are doing alright! Anyone out there try D ribose or the amino acids? I am trying another amino acid blend with caffeine today seeing how I feel about it. I think it’s helped quite a lot. I am just trying not to overdo it as is easy to do when you have fake energy! I’ll keep you updated on that. I wanted to take a quick break from my “Things that help me” series and address a question I get frequently. How to apply to apply for future Cortene studies. How to Qualify for Future Studies Before we dive in, I…

  • Helpful ME/CFS tips

    Things that help me: Amino Acids and Excedrin Migraine (Makes me feel *almost* normal!)

    Hello friends! I am excited to share this one with you. When I take this combination I can actually see glimpses of who I used to be. It’s amaze balls! Disclaimer: these supplements are by no means a cure for ME/CFS, and I am a what is considered a mild case. If you are in more serious condition I don’t know how they would effect you. If you are a more serious case and decide to try it, please let me know what your results are! And of course, talk to your doctor before you try anything new no matter what your condition is blah blah blah. PS. It blows…

  • Helpful ME/CFS tips,  ME/CFS Inspiration

    Things that help me: D-Ribose

    Hey there friends! I hope you are all hanging in there. I have been thinking about it and decided to do a series of posts on supplements and other things that have helped me with my ME/CFS symptoms and general energy crisis. I think I will try and post one once a week. I don’t guarantee they will help you too, but I would say they are worth a shot. Today I want to talk about my favorite supplement, and the first thing that actually helped me with my ME/CFS, D-ribose! D-ribose I stumbled upon the idea of D-ribose in the book Fatigued to Fantastic by Dr. Joseph Teitelbaum. As a…

  • Cortene Study

    Cortene Trial Update!

        Hello ME/CFS friends! I have received so many kind and encouraging comments and emails about the Cortene trial. Thank you all so much for your support! I have been dying to write here and tell you all how I am doing, but alas I am still not allowed. I’m not sure when or if I will be allowed to fully divulge the details of my results. It’s disappointing and frustrating, I know. The reason why I am not allowed to talk about it is there is potential for such a huge array of responses to the medication. They don’t have anyone who gets the medicine to have a…

  • Cortene Study

    It’s Here! Cortene Trial: Infusions

    Hey everybody! I hope you are well. Some good news for us! The Bateman Horne Center is moving forward with CT38 infusions, and my first infusion is TOMORROW! EEK! I am equal parts excited and terrified. It is going to be a three hour subcutaneous infusion. My second infusion will be on Wednesday of this week. As you remember they changed the study so all patients will be getting the low dose. I am expecting to have some mild side effects, but nothing serious. Fingers crossed! The good news: The study is moving forward and we are closer to knowing whether or not CT38 is a cure for ME. The…